Relearning to Breathe. 

( This blog was featured on Bedlam Magazine http://www.bedlammag.com/relearning-to-breathe-learning-to-be-okay-with-a-chronic-illness/?utm_content=buffered0bd&utm_medium=social&utm_source=facebook.com&utm_campaign=buffer )

I read somewhere that your body begins to die when you turn 25.

Well, exactly five months after I turned 25, I felt the effects of this statement.

It was a Sunday. I woke up and went to church. I came home, ate lunch, uploaded a dumb video onto my Instagram account, and hopped into bed to finish a 24-hour rental of The Fault in Our Stars. Naturally, I laid in bed weeping upon the movie’s conclusion (I read the book. I knew how it ended. Doesn’t matter. Tears always ensue. Trust me, you don’t want to be near me during Titanic or Toy Story 3). Then I got out of bed, and my life changed forever.

You know how everyone always talks about how your life can change in a second? Well, mine did. I got into bed a healthy 25 year old and I got out of bed a sick one. I got into bed well and I got out of bed broken.

Long story, really short, ever since that moment I got out bed, I have been battling an unknown and debilitating illness that has left me bedridden for a great deal of the past, nearly, 9 months. I am a “mystery” to the doctors, and have lived at the mercy of my crippling symptoms.

I won’t pretend to compare myself to those of you who have suffered through or are currently suffering through illnesses that can only be described with four letter words through gritted teeth. But I do want you to know that, in what way I can, I get it. I get chronic illness. I get never feeling well. I get forgetting what it feels like to feel okay. I get people expecting you to be okay, and you’re not. I get trying to do something simple, like take a shower or drive to Starbucks, and it only reminding you how not okay you are. I get sitting in your car after said Starbucks run, body seizing in pain, and weeping–weeping because you’re not okay and weeping because you don’t know if you ever will be again. I get the bitterness and jealousy you feel toward other people who live seemingly care-free lives. I get the loneliness. I get feeling like you’re nothing–like you mean nothing because you can do nothing. I get trying to smile and to act normal when your body is attacking you every moment of every day. I get feeling like a shadow of the person you once were. I get sitting in a clinical counselor’s office listening to her tell you unhelpful things. I get the despair. I get being given anti-depressants that make you fantasize about ways to kill yourself. I get begging God to let you die. To let you be free. I get wanting desperately to be free.

I’ve realized that Christian suffering places you within the Biblical tension of Luke 22:42. Jesus, on the Mount of Olives, prays, “Father, if you are willing, remove this cup from me. Nevertheless, not my will, but yours, be done.” Christian suffering places you in the tension of that prayer–the tension between “Remove this cup from me” and “not my will, but yours be done”. This is the tension I am desperately trying to live in. Trying desperately to breathe in. It’s suffocating sometimes. The “But if not” of Daniel 3. God is more than able to save–to heal. We worship a God we cannot exaggerate. He is able to do immeasurably more than all that we ask or think. I believe with all my heart that God is able to heal my broken body. But if not. God’s character would not change. He wouldn’t become less good, less able, or less powerful. In all things, He has never and will never become less “for me”.

I have heard it all during my illness. I have been told to pray harder. I have been told I don’t have enough faith. I just need to believe harder. If I believe hard enough, I will be healed. I have been told I just need to see the “right” person who is, I suppose, properly trained in prayer to pray over me. I have been told I needed to go to a healing service or a healing ministry, then I would be healed. I have been told I had unconfessed sin that I needed to repent of. Yes, I have even been told that my illness was related to my love for the Harry Potter books. You learn a lot about your theology in the midst of suffering. And you learn a lot about others’ (I have simultaneously learned how to not be completely miserable at healthy confrontation because of above comments) (Side note: During my struggle with sickness, I have eagerly welcomed any and all who have been willing to pray for me. I disagree, however, with any “magic formula” for healing).

But I just go back to the tension. I believe Jesus lived there. And somehow, some way, I am praying to learn how to live there too. Praying for help to live in the tension. To live believing with all of my heart that God is good, that He is able to heal that which is broken, and yet, no matter what, that He is perfect in all of His ways. To live praying earnestly for healing–to desire healing and freedom from my physical suffering in this life yet ultimately desiring and praying for the Lord’s will to be done–whatever that may be.

I’m not sure how to live there but I’m learning. Learning to live and to breathe in the tension. That God desires to heal, but sometimes He chooses not to. That He came to give us an abundant life, but we suffer in this fallen world. That I am trapped inside a body that tortures me day and night, and the Lord is sovereign over it all. The tension of He is more than able, but if not, He is still good. Lord, heal me. Yet not my will but Yours be done. Learning every day to pray for healing, yet praying “Thy will be done”. Learning that if I never get better, God is still good. That somehow in the midst of pain and suffering, God has not abandoned me. That if I am never able to finish my degree, travel the world, get married, have a family, and pursue all of my dreams, God loves me. And that is God loving me. Learning that the “good” in Romans 8:28 is found in Romans 8:29–all things work together for believers to be conformed into the image of His Son. As Elisabeth Elliot writes,

“Our vision is so limited we can hardly imagine a love that does not show itself in protection from suffering. The love of God is of a different nature altogether. It does not hate tragedy. It never denies reality. It stands in the very teeth of suffering. The love of God did not protect His own Son. The cross was the proof of His love – that He gave that Son, that He let Him go to Calvary’s cross, though “legions of angels” might have rescued Him. He will not necessarily protect us – not from anything it takes to make us like His Son. A lot of hammering and chiseling and purifying by fire will have to go into the process.”

I’ve learned (am learning) a lot of lessons in the darkness. Maybe I can sit with you over a cup of coffee one day and we can share about all the lessons learned in the ashes. The Lord hasn’t rescued me from this suffering. And perhaps He might, in His infinite wisdom, choose not to. But I don’t believe that will be because I didn’t believe hard enough, have the right person pray over me, or because I find Harry Potter to be the freakin best (I literally feel sadness for people who have never read them). And it certainly is not because God is not able to heal me. If I never get better, I trust that His ways are higher than mine. The Lord gives and the Lord takes away, blessed be the name of the Lord.

Regardless of what happens, He is with me. And He is with you. He is committed to our good and He is committed to His glory. We might not understand how that plays out, but “He who did not spare his own Son but gave him up for us all, how will he not also with him graciously give us all things?” (Romans 8:32). In the valleys of deep darkness, our Shepherd has promised to sustain us and to satisfy us. He has not abandoned me and He will never abandon you. In my darkness, He is slowly but surely rescuing me from self-reliance and self-worship. He is rescuing me from working to save myself. He is rescuing me from misplaced hope. He is rescuing me from me. May my ultimate hope be found in God, not in being healed.

I pray that you and I will learn to live in the tension. To praise God in the tension. To find joy in the tension. To fall on our faces in worship in the tension. To rest in the tension. To breathe in the tension.

An, to eagerly await the day when all the sad things will come untrue. Amen, come Lord Jesus.

“And I heard a loud voice from the throne saying, “Behold, the dwelling place of God is with man. He will dwell with them, and they will be his people, and God himself will be with them as their God. He will wipe away every tear from their eyes, and death shall be no more, neither shall there be mourning, nor crying, nor pain anymore, for the former things have passed away.”

Revelation 21:3-4

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2 thoughts on “Relearning to Breathe. 

  1. weird semicreeper guy from the past here.

    i am sorry you are suffering still. i will say i am so terribly sorry for the Christians who try to offer help in the same way Job’s friends did. i am so terribly sorry you hurt. i have no words of encouragement or any wise ideas to get you out of your illness. These are the words i do have:

    Your posts continue to speak to me and i have no doubt many others. And i am so very much glad that you are living, albeit super bummed of the pain you are undergoing. Unlike the faith that abandoned humanity when pandoa’s box was opened and calamity supposedly afflicted the world, we have a Faith that entered our world, suffering our worsts punishment and loving us throughout.

    We have a God who knows of humanity’s joys, laughter, tear, pain, hunger, thirst, hope, and death. We have a God who knows what suffering is, and suffers with us in our pain–our God is literally compassionate (to suffer with). Our God cares deeply for us for our God is good. I know you know these things because of your eloquent post on Shadrach, Meshach and Abednego.

    Your wisdom is astounding, and I am praying for you!

  2. Shara, I am constantly praying for you. How stupid of anyone to say your illness is because of lack of faith, or Harry Potter books. God does not cause illness. I have faith God will heal you. I will pray today for healing. And if healing does not come today. I pray tomorrow, and the next day, and the next, until you are healed. But of course, I am focusing my energy on healing for TODAY, in the Present! Have you read the book, Visions from Heaven by the lady from GODTV? It’s super good, I think you would really like it if you haven’t already read it. =) Heaven on Earth. God is not a liar. I believe Him when he says, on Earth as it is in Heaven, and we will not stop until that truth is made a reality on Earth.

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